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- BLOG - Access to secure data during the Covid-19 pandemic - a model for the future?
- Covid-19 and Care Homes: Advances in Administrative Data Research during the pandemic
- DATA INSIGHTS -Deprivation and informal care at the end of life
- BLOG - Reflections on engaging with children & young people about data
- NEWS - Innovative new residential linkage tool launched
- BLOG SERIES - Dramatic increase in deaths at home- No.4
- DATA INSIGHTS - Youth Movements, Social Mobility and Health Inequalities
- NEWS - New report warns of deepening poverty crisis for Scottish families
- New report on Infants Born into Care in Scotland
- Spotlight on Dr Elizabeth Lemmon
- Spotlight on Jan Savinc
- BLOG - Covid-19 fines in Scotland: What we know so far
- BLOG - The value of social science and administrative data research in Scotland: how we are helping respond to COVID-19
- NEWS - Joining together with Research Data Scotland to co-host existing public panel on data
- DATA INSIGHTS - Exploring illegal drug consignments in Scotland
- DATA INSIGHTS -Linking two administrative data sets about looked after children
- NEWS - ADR UK grants 20 PhD studentship opportunities focused on quantitative research using linked administrative data
- NEWS – ADR Scotland data ambassadors launched
- Spotlight on Peter Christen
- The importance of administrative data
- Virtual Conference - Data Linkage: Information to Impact
- An Introduction to Data Science for Administrative Data Research course - March 2023
- BLOG SERIES - Dramatic increase in deaths at home - No.7
- BLOG SERIES - Dramatic increase in deaths at home
- BLOG SERIES - Dramatic increase in deaths at home- No.3
- DATA INSIGHTS - Investigating the effects of class composition and class size on pupils’ attainment in Scottish primary schools
- NEWS - New opportunity to join ADR Scotland’s Public Panel
- BLOG - Engaging the public through our public panel
- BLOG - Exploring the potential of synthetic data
- Children’s Health in Care in Scotland (CHiCS)
- DATA INSIGHTS - Automatic Coding of Occupations: Methods to create the Scottish Historic Population Database (SHPD)
- DATA INSIGHTS - Selective schools: do they improve health?
- DATA INSIGHTS - Were people who died at home less likely to attend hospital at the end of life during the Covid pandemic?
- EVENT - Active Travel: New Data, New Insights
- EVENT - Holyrood Evidence Week: Doing Data Better for Policy and Public Good
- EVENT - Unlocking criminal justice data in Scotland: Findings from Data First
- IPDLN Conference - Data linkage research: informing policy and practice
- NEWS - Making nursing data available to inform policy
- Scout and Guide participation boosts later life health
- BLOG - Geospatial Ambitions
- BLOG - Taking historical death records and developing a database for future analysis
- BLOG - Unlocking criminal justice data
- DATA INSIGHTS - Community mortality due to Covid-19
- DATA INSIGHTS - What makes people more likely to cycle to work?
- Future-proofing investment into administrative data research announced in Scotland
- NEWS - Understanding the dynamics of the nursing workforce: the potential of routinely collected data
- Spotlight on Joanna Soraghan
- Spotlight on Katherine Falconer
- Why misconceptions about population data can lead to bad outcomes
- ADR Scotland publishes its strategy for 2022-2026
- BLOG: Developing a cross-national research agenda on crime and convictions
- BLOG: Working together to make a difference with data
- DATA INSIGHTS - Homelessness duration in Scotland: how long does rehousing take?
- DATA INSIGHTS - Occupation and COVID-19 deaths: Scotland in a comparative perspective
- DATA INSIGHTS -The health and economic benefits of active commuting in Scotland
- EVENT - ADR UK Conference 2023
- NEWS - New comic on children's rights and data
- NEWS - Report published on our children’s engagement pilot study
- NEWS - When did fines issued by the police for breaking Covid rules peak?
- Scotland’s portfolios: Research and Statistical Data - building a new approach to thematic data linkage
- Spotlight on Cecilia Macintyre
- Spotlight on Dr Evan Williams
- Spotlight on Fernando Pantoja
- Spotlight on Laurie Berrie
- ADR Scotland Winter Partnership Session - **internal event**
- BLOG - AGEING AND HOMELESSNESS IN SCOTLAND
- BLOG - Can we use linked administrative data to identify social disadvantage?
- BLOG - Commuting and its impact on health
- BLOG - The Dynamics of the Nursing Workforce in the UK: Using data to support our nurses
- BLOG: Growing up in kinship care
- DATA INSIGHTS - Analysing a season of death and excess mortality in Scotland’s past
- EVENT - ADR UK Virtual Half Day event
- EVENT - HDR UK Conference: Data for global health and society
- Event - Public data for public good: towards better understanding children's lives
- NEWS - Data research initiative secures £90 m funding extension
- NEWS: Our role supporting the new Covid-19 research data service in Scotland
- Spotlight on Gina Anghelescu
- Spotlight on Michelle K Jamieson
- Webinar - An Introduction to Looked-After Children Dataset
- ADR Scotland Away Day (**for staff only**)
- BLOG - An Inside Job: Using Criminology, Police Data and a Lot of Nouse
- BLOG - Improving justice data to promote data justice in Scotland
- BLOG - Location of death in 2020: a changing trend from hospitals to homes
- BLOG - Seeking feedback on Research Data Scotland’s core principles via our public panel
- BLOG - What skills, training and support are required by those wishing a career as an administrative data researcher?
- BLOG No. 9 - Final blog in this 'deaths at home' series
- BLOG SERIES - Dramatic increase in deaths at home - No. 6
- BLOG SERIES - Dramatic increase in deaths at home - No.8
- BLOG SERIES - Dramatic increase in deaths at home- No.5
- BLOG: 5 things I've learnt about working with policymakers...
- BLOG: Automating Coding for Large Historical Datasets
- BLOG: COVID-19- How increased deaths at home impact the carer community
- DATA INSIGHTS -Postal deliveries of drugs in Scotland
- EVENT - 'Getting things done with data in government'
- EVENT - Linking public sector data for research: an ADR UK showcase event
- EVENT Seminar - Administrative data for social policy research: potential and pitfalls
- NEWS - Additional funding for Understanding Children’s Lives and Outcomes
- NEWS - Engaging children and young people
- NEWS: Police use of Fixed Penalty Notices under the Covid-19 regulations in Scotland: A new data report highlights links with deprivation and inequality
- NEWS: Police use of the new Covid-19 powers: Using administrative data to analyse and evaluate practice
- Research Data Scotland - New user forum
- Spotlight on Dr Patricio Troncoso
- Spotlight on Renata Samulnik
- Summary of ADR Scotland Winter Partnership session
- Directorship of the International Population Data Linkage Network (IPDLN) for 2021-22.
- BLOG: In the light of experience: InterRAI and the final thousand days of life
- Multiple health conditions and social care
- NEWS - Susan McVie elected as Fellow of the Academy of Social Sciences
- SCADR relocates to the Bayes Centre
- EVENT: Four day introduction to using administrative data for social and health research
- BLOG: The value of administrative data: DALYs and the Scottish Burden of Disease study
- BLOG: Where to start with parliamentary and policy engagement
- EVENT - International Conference on Administrative Data Research, Cardiff
- EVENT - Using data to realise the potential of the 'Last 1000 days'
- EVENT: TalkingData: ADR Scotland mini-summit
- EVENT: “Let’s use data to save time, money and lives”: ADR Scotland partners gather for mini-summit
- EVENTS: ADR Scotland researchers present at international conference in Cardiff
NEWS - Report published on our children’s engagement pilot study
Our children’s research lead, Professor Morag Treanor, discusses our children’s engagement pilot and is delighted to share the findings in our report published today.
ADR Scotland worked in partnership with Children in Scotland to hold five workshops with a group of children and young people from across Scotland to understand their views about administrative data, data research and how researchers should communicate their research findings.
One thing that was very clear from the start, was that the children and young people had a good awareness of the large amount of data that was collected and stored about them, both in relation to administrative data collected by public services and online purchasing habits and social media usage.
The group felt it was a good thing for anonymised data on children’s lives to be used to benefit others so long as the information was anonymous and not personal. However, they felt that organisations weren’t good at telling children (and adults) when their personal data was being collected and for what purpose. They suggested that the majority of people their age would click ‘agree’ to pop-up notices without reading the details on what the data is stored for and what purpose it can be used for.
Of particular benefit to us as researchers was the children and young people’s views and advice on how we should communicate our findings. We gave examples of what we had done previously and, in the first example of a ‘Timeline with complex information’, the young people felt it was too cramped and busy, and was very difficult to read. We were advised to simplify and to pick out the important information to be conveyed. On discussing survey results, the participants liked bar charts, as these were familiar. However, they very much liked the creative, pictorial presentation of survey findings in, for example, comics or animations. In general the group felt that researchers need to ensure that data is communicated in an easy to understand method, make it engaging and using colour and images, as well as including links to websites to show references and suggest further reading if people wish to find out more information.
The summary report of the pilot can be viewed here.
Our senior researcher, Dr Robert Porter suggests that:
We as researchers need to learn from what children and young people are telling us and change how we report findings. Using storylines to explain what the data means, alongside clear, simple graphics, and avoiding jargon and technical language, will enable everyone to engage with our key messages. This will also support children’s rights to learn how their data has been used.
The children and young people also held discussions on children’s rights and how these relate to children and young people’s data and data research. With the Scottish Government’s commitment to incorporate the United Nations Convention on the Rights of the Child (UNCRC) into Scots Law, we wanted the group to be confident that they knew which UNCRC articles were relevant to ensuring children and young people’s privacy needs were protected.
Finally, we asked the group what they wanted the legacy of the project to be. The key messages that they wanted to share can be found below and in the full report.
The lead of our children's lives and outcomes theme, Professor Morag Treanor said:
We are grateful to Children in Scotland for creating these discussions, and especially grateful to the children and young people who gave up their time and committed themselves fully to engaging with our work. Asking people to discuss data and research is not everyone’s cup of tea and we were hugely fortunate that this group did it whole-heartedly. The next steps lie with us. We will keep their recommendations front and centre of our work and will ensure that we communicate our work in ways that are accessible and meaningful to children and young people.
This article was published on 27 Jun 2022