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- BLOG - Access to secure data during the Covid-19 pandemic - a model for the future?
- Covid-19 and Care Homes: Advances in Administrative Data Research during the pandemic
- DATA INSIGHTS -Deprivation and informal care at the end of life
- BLOG - Reflections on engaging with children & young people about data
- NEWS - Innovative new residential linkage tool launched
- BLOG SERIES - Dramatic increase in deaths at home- No.4
- DATA INSIGHTS - Youth Movements, Social Mobility and Health Inequalities
- NEWS - New report warns of deepening poverty crisis for Scottish families
- New report on Infants Born into Care in Scotland
- Spotlight on Dr Elizabeth Lemmon
- Spotlight on Jan Savinc
- BLOG - Covid-19 fines in Scotland: What we know so far
- BLOG - The value of social science and administrative data research in Scotland: how we are helping respond to COVID-19
- NEWS - Joining together with Research Data Scotland to co-host existing public panel on data
- DATA INSIGHTS - Exploring illegal drug consignments in Scotland
- DATA INSIGHTS -Linking two administrative data sets about looked after children
- NEWS - ADR UK grants 20 PhD studentship opportunities focused on quantitative research using linked administrative data
- NEWS – ADR Scotland data ambassadors launched
- Spotlight on Peter Christen
- The importance of administrative data
- Virtual Conference - Data Linkage: Information to Impact
- An Introduction to Data Science for Administrative Data Research course - March 2023
- BLOG SERIES - Dramatic increase in deaths at home - No.7
- BLOG SERIES - Dramatic increase in deaths at home
- BLOG SERIES - Dramatic increase in deaths at home- No.3
- DATA INSIGHTS - Investigating the effects of class composition and class size on pupils’ attainment in Scottish primary schools
- NEWS - New opportunity to join ADR Scotland’s Public Panel
- BLOG - Engaging the public through our public panel
- BLOG - Exploring the potential of synthetic data
- Children’s Health in Care in Scotland (CHiCS)
- DATA INSIGHTS - Automatic Coding of Occupations: Methods to create the Scottish Historic Population Database (SHPD)
- DATA INSIGHTS - Selective schools: do they improve health?
- DATA INSIGHTS - Were people who died at home less likely to attend hospital at the end of life during the Covid pandemic?
- EVENT - Active Travel: New Data, New Insights
- EVENT - Holyrood Evidence Week: Doing Data Better for Policy and Public Good
- EVENT - Unlocking criminal justice data in Scotland: Findings from Data First
- IPDLN Conference - Data linkage research: informing policy and practice
- NEWS - Making nursing data available to inform policy
- NEWS - New report on The Impact of Covid-19 on Children’s Care Journeys in Scotland: An Analysis of the Administrative Data on 'Looked After' Children
- NEWS - Updated report on Infants Born into Care in Scotland
- Scout and Guide participation boosts later life health
- BLOG - Geospatial Ambitions
- BLOG - Taking historical death records and developing a database for future analysis
- BLOG - Unlocking criminal justice data
- DATA INSIGHTS - Community mortality due to Covid-19
- DATA INSIGHTS - What makes people more likely to cycle to work?
- Future-proofing investment into administrative data research announced in Scotland
- NEWS - Understanding the dynamics of the nursing workforce: the potential of routinely collected data
- Spotlight on Joanna Soraghan
- Spotlight on Katherine Falconer
- Why misconceptions about population data can lead to bad outcomes
- ADR Scotland publishes its strategy for 2022-2026
- BLOG - Developing and re-shaping our public panel
- BLOG - Review of the recent DWP Areas of Research Interest Workshop
- BLOG: Developing a cross-national research agenda on crime and convictions
- BLOG: Working together to make a difference with data
- DATA INSIGHTS - Homelessness duration in Scotland: how long does rehousing take?
- DATA INSIGHTS - Occupation and COVID-19 deaths: Scotland in a comparative perspective
- DATA INSIGHTS -The health and economic benefits of active commuting in Scotland
- EVENT - ADR UK Conference 2023
- EVENT - RSE The secret world of data
- NEWS - New comic on children's rights and data
- NEWS - Report published on our children’s engagement pilot study
- NEWS - When did fines issued by the police for breaking Covid rules peak?
- Scotland’s portfolios: Research and Statistical Data - building a new approach to thematic data linkage
- Spotlight on Cecilia Macintyre
- Spotlight on Dr Evan Williams
- Spotlight on Fernando Pantoja
- Spotlight on Laurie Berrie
- ADR Scotland Winter Partnership Session - **internal event**
- BLOG - AGEING AND HOMELESSNESS IN SCOTLAND
- BLOG - Can we use linked administrative data to identify social disadvantage?
- BLOG - Commuting and its impact on health
- BLOG - The Dynamics of the Nursing Workforce in the UK: Using data to support our nurses
- BLOG: Growing up in kinship care
- Congratulations to Alastair McAlpine, the new Chief Statistician for Scottish Government
- DATA INSIGHTS - Analysing a season of death and excess mortality in Scotland’s past
- EVENT - ADR UK Virtual Half Day event
- EVENT - HDR UK Conference: Data for global health and society
- EVENT - Introduction to Data Science for Administrative Data Research course (IDS-ADR)
- Event - Public data for public good: towards better understanding children's lives
- NEWS - ADR Scotland's first flagship dataset
- NEWS - Data research initiative secures £90 m funding extension
- NEWS: Our role supporting the new Covid-19 research data service in Scotland
- Spotlight on Gina Anghelescu
- Spotlight on Michelle K Jamieson
- Webinar - An Introduction to Looked-After Children Dataset
- ADR Scotland Away Day (**for staff only**)
- BLOG - An Inside Job: Using Criminology, Police Data and a Lot of Nouse
- BLOG - Improving justice data to promote data justice in Scotland
- BLOG - Location of death in 2020: a changing trend from hospitals to homes
- BLOG - Reflecting on the ADR UK Conference: Insights from our new PhD Researchers
- BLOG - Seeking feedback on Research Data Scotland’s core principles via our public panel
- BLOG - What skills, training and support are required by those wishing a career as an administrative data researcher?
- BLOG No. 9 - Final blog in this 'deaths at home' series
- BLOG SERIES - Dramatic increase in deaths at home - No. 6
- BLOG SERIES - Dramatic increase in deaths at home - No.8
- BLOG SERIES - Dramatic increase in deaths at home- No.5
- BLOG: 5 things I've learnt about working with policymakers...
- BLOG: Automating Coding for Large Historical Datasets
- BLOG: COVID-19- How increased deaths at home impact the carer community
- DATA INSIGHTS -Postal deliveries of drugs in Scotland
- EVENT - 'Getting things done with data in government'
- EVENT - Linking public sector data for research: an ADR UK showcase event
- EVENT Seminar - Administrative data for social policy research: potential and pitfalls
- NEWS - ADR Scotland launches new podcast series
- NEWS - Additional funding for Understanding Children’s Lives and Outcomes
- NEWS - Engaging children and young people
- NEWS: Police use of Fixed Penalty Notices under the Covid-19 regulations in Scotland: A new data report highlights links with deprivation and inequality
- NEWS: Police use of the new Covid-19 powers: Using administrative data to analyse and evaluate practice
- Research Data Scotland - New user forum
- Spotlight on Dr Patricio Troncoso
- Spotlight on Renata Samulnik
- Summary of ADR Scotland Winter Partnership session
- Directorship of the International Population Data Linkage Network (IPDLN) for 2021-22.
- BLOG: In the light of experience: InterRAI and the final thousand days of life
- Multiple health conditions and social care
- NEWS - Susan McVie elected as Fellow of the Academy of Social Sciences
- SCADR relocates to the Bayes Centre
- EVENT: Four day introduction to using administrative data for social and health research
- BLOG: The value of administrative data: DALYs and the Scottish Burden of Disease study
- BLOG: Where to start with parliamentary and policy engagement
- EVENT - International Conference on Administrative Data Research, Cardiff
- EVENT - Using data to realise the potential of the 'Last 1000 days'
- EVENT: TalkingData: ADR Scotland mini-summit
- EVENT: “Let’s use data to save time, money and lives”: ADR Scotland partners gather for mini-summit
- EVENTS: ADR Scotland researchers present at international conference in Cardiff
BLOG - How increased deaths at home during COVID-19 impacts the carer community
This week is Carers Week and our lead for Health and Social Care, Dr Iain Atherton, explores the implications of the pandemic for informal care and those who live alone, building on Dr David Henderson’s analysis from last week.
Death registration data provides invaluable insights into so many different aspects of death and dying. This is especially apparent during the current COVID-19 pandemic with daily updates on the numbers of people who have died who have had the virus.
Deaths at home are notable given the implications for informal carers, as well as for formal primary and social care. Dying at home often involves, indeed even requires, the intrinsic support and care of loved ones, often spouses, partners, and adult children. Those trends as to deaths at home tell us not only something about where people are dying, but raise questions about those providing care and support.
David’s blog clearly demonstrated a shift in the proportion of deaths occurring at home. The data he presented excluded COVID-19 deaths and hence cannot be explained by increasing numbers directly attributable to the pandemic. Rather, the figures point towards deaths that would have previously happened in hospital now happening at home. Indeed, figures from National Records for Scotland show that during the week of 18th May 2020, more people died at home than died in hospital (NRS, last accessed on 10 June 2020). Whilst there has been some indication of a shift towards dying at home over recent years, and is the focus of work currently moving forward at SCADR, the figures represent a remarkable shift during the current pandemic.
There are likely a myriad of reasons as to why people might be increasingly dying at home. There may be a reluctance to admit people who are frail to hospital and especially where they are very likely approaching the end of life rather than needing acute treatment. There may also be an element of choice with people preferring to die at home during this period of time perhaps due to perceptions of the situation in hospitals.
Whether that shift towards dying at home is short or long-term is unclear. It may well be influenced by the duration of the ongoing pandemic. The production of a vaccine might shift approaches towards end of life care back to previous patterns of hospitalization, or it might be that this shift towards home deaths is longer term.
Either way, this shift gives focus on the role of informal carers and how we support their important role. Looking after a loved one at home during their final days is challenging both physically and psychologically. It also raises questions as to how to support those who perhaps do not have family immediately available to look after them.
In both scenarios, the importance of community services is crucial, to support those providing care to loved ones, and to ensure those with fewer options to draw on family or others close to them are supported.
This article was published on 12 Jun 2020