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- BLOG - Access to secure data during the Covid-19 pandemic - a model for the future?
- Covid-19 and Care Homes: Advances in Administrative Data Research during the pandemic
- DATA INSIGHTS -Deprivation and informal care at the end of life
- NEWS - Innovative new residential linkage tool launched
- BLOG SERIES - Dramatic increase in deaths at home- No.4
- DATA INSIGHTS - Youth Movements, Social Mobility and Health Inequalities
- NEWS - New report warns of deepening poverty crisis for Scottish families
- New report on Infants Born into Care in Scotland
- Spotlight on Dr Elizabeth Lemmon
- Spotlight on Jan Savinc
- BLOG - The value of social science and administrative data research in Scotland: how we are helping respond to COVID-19
- DATA INSIGHTS - Exploring illegal drug consignments in Scotland
- DATA INSIGHTS -Linking two administrative data sets about looked after children
- NEWS – ADR Scotland data ambassadors launched
- The importance of administrative data
- Virtual Conference - Data Linkage: Information to Impact
- BLOG SERIES - Dramatic increase in deaths at home - No.7
- BLOG SERIES - Dramatic increase in deaths at home
- BLOG SERIES - Dramatic increase in deaths at home- No.3
- DATA INSIGHTS - Investigating the effects of class composition and class size on pupils’ attainment in Scottish primary schools
- NEWS - New opportunity to join ADR Scotland’s Public Panel
- BLOG - Exploring the potential of synthetic data
- DATA INSIGHTS - Automatic Coding of Occupations: Methods to create the Scottish Historic Population Database (SHPD)
- DATA INSIGHTS - Selective schools: do they improve health?
- EVENT - Active Travel: New Data, New Insights
- EVENT - Holyrood Evidence Week: Doing Data Better for Policy and Public Good
- IPDLN Conference - Data linkage research: informing policy and practice
- BLOG - Geospatial Ambitions
- BLOG - Taking historical death records and developing a database for future analysis
- DATA INSIGHTS - Community mortality due to Covid-19
- DATA INSIGHTS - What makes people more likely to cycle to work?
- Future-proofing investment into administrative data research announced in Scotland
- NEWS - Understanding the dynamics of the nursing workforce: the potential of routinely collected data
- Spotlight on Joanna Soraghan
- Spotlight on Katherine Falconer
- ADR Scotland publishes its strategy for 2022-2026
- BLOG: Developing a cross-national research agenda on crime and convictions
- BLOG: Working together to make a difference with data
- DATA INSIGHTS - Homelessness duration in Scotland: how long does rehousing take?
- DATA INSIGHTS - Occupation and COVID-19 deaths: Scotland in a comparative perspective
- DATA INSIGHTS -The health and economic benefits of active commuting in Scotland
- NEWS - Report published on our children’s engagement pilot study
- Spotlight on Dr Evan Williams
- Spotlight on Fernando Pantoja
- Spotlight on Laurie Berrie
- ADR Scotland Winter Partnership Session - **internal event**
- BLOG - AGEING AND HOMELESSNESS IN SCOTLAND
- BLOG - Can we use linked administrative data to identify social disadvantage?
- BLOG - Commuting and its impact on health
- BLOG - The Dynamics of the Nursing Workforce in the UK: Using data to support our nurses
- BLOG: Growing up in kinship care
- DATA INSIGHTS - Analysing a season of death and excess mortality in Scotland’s past
- EVENT - ADR UK Virtual Half Day event
- Event - Public data for public good: towards better understanding children's lives
- NEWS - Data research initiative secures £90 m funding extension
- NEWS: Our role supporting the new Covid-19 research data service in Scotland
- Spotlight on Michelle K Jamieson
- Webinar - An Introduction to Looked-After Children Dataset
- BLOG - An Inside Job: Using Criminology, Police Data and a Lot of Nouse
- BLOG - Improving justice data to promote data justice in Scotland
- BLOG - Location of death in 2020: a changing trend from hospitals to homes
- BLOG - Seeking feedback on Research Data Scotland’s core principles via our public panel
- BLOG - What skills, training and support are required by those wishing a career as an administrative data researcher?
- BLOG No. 9 - Final blog in this 'deaths at home' series
- BLOG SERIES - Dramatic increase in deaths at home - No. 6
- BLOG SERIES - Dramatic increase in deaths at home - No.8
- BLOG SERIES - Dramatic increase in deaths at home- No.5
- BLOG: 5 things I've learnt about working with policymakers...
- BLOG: Automating Coding for Large Historical Datasets
- BLOG: COVID-19- How increased deaths at home impact the carer community
- DATA INSIGHTS -Postal deliveries of drugs in Scotland
- EVENT - 'Getting things done with data in government'
- EVENT - Linking public sector data for research: an ADR UK showcase event
- EVENT Seminar - Administrative data for social policy research: potential and pitfalls
- NEWS - Additional funding for Understanding Children’s Lives and Outcomes
- NEWS - Engaging children and young people
- NEWS: Police use of Fixed Penalty Notices under the Covid-19 regulations in Scotland: A new data report highlights links with deprivation and inequality
- NEWS: Police use of the new Covid-19 powers: Using administrative data to analyse and evaluate practice
- Research Data Scotland - New user forum
- Spotlight on Dr Patricio Troncoso
- Summary of ADR Scotland Winter Partnership session
- Directorship of the International Population Data Linkage Network (IPDLN) for 2021-22.
- BLOG: In the light of experience: InterRAI and the final thousand days of life
- Multiple health conditions and social care
- NEWS - Susan McVie elected as Fellow of the Academy of Social Sciences
- SCADR relocates to the Bayes Centre
- EVENT: Four day introduction to using administrative data for social and health research
- BLOG: The value of administrative data: DALYs and the Scottish Burden of Disease study
- BLOG: Where to start with parliamentary and policy engagement
- EVENT - International Conference on Administrative Data Research, Cardiff
- EVENT - Using data to realise the potential of the 'Last 1000 days'
- EVENT: TalkingData: ADR Scotland mini-summit
- EVENT: “Let’s use data to save time, money and lives”: ADR Scotland partners gather for mini-summit
- EVENTS: ADR Scotland researchers present at international conference in Cardiff
Care in the last years of life
This research explores factors influencing the availability and use of formal and unpaid care during the final stages of life.
Our research
The overall aim of this study is to develop an understanding of factors influencing the availability and utilisation of formal and informal care in Scotland during the final stages of life, and study trends over time. The research explores:
- What was the household structure of people in the last days of life in 2001 and in 2011, at national and local level?
- Did household structure change with proximity to death?
- How did the household structures of people in their last days of life at the 2011 Census compare with people who were still alive a year later? How did these differences compare with the situation at the 2001 Census?
- To what extent was place of death predicted by living arrangements at the Census preceding death?
- Did changes in household structure explain trends in place of death in 2011 relative to 2001 amongst people with cancer, at a national and local level?
- What was the impact of household structure (and specifically living alone) on hospital admission patterns prior to death?
- Did the effects of household structure differ by place of residence, by socio-economic status, or by socio-demographic status?
- What impact does informal care have on health and social care services, specifically with regards to hospital and nursing home admissions?
- What were the cost implications to formal care of living arrangements in the final stages of life?
Potential future projects may involve understanding of factors influencing the availability of unpaid care during the final stages of life and how this impacts on formal care use. This will look to:
- explore the extent to which unpaid care leads to avoidance (or otherwise) of hospitalisations in Scotland, and
- critically assess whether there is evidence to support a belief that retirement migration markedly increases demands for formal social care in NHS Highland.
From December 2021, we are also working on a new project Exploring the increase in deaths at home in Scotland, both during Covid-19 and after the pandemic.
Data this research aims to link and analyse
- Inpatients and day case records in Scotland
- Cancer registration
- Prescribing Information System
- CHI (Community Health Index)
- 2001 and 2011 Census
- Deaths register
Research team
Publications, Outputs and Media Coverage
When further publications or outputs are available, they will be shared here. For more information about this project, please contact us.